Day 9: Difficult Day

Ronda had a very frustrating and difficult day today, and for us, it felt so much worse juxtaposed to so many good days all in a row. We kept referring back to one of our first intensivists who warned us there would good days and bad days; days of remarkable advance and days when you think all has been for naught. "So it's just like the stock market" I whispered to no one. We now think it all boiled down to a lack of sleep for roughly 48 hours accompanied by persistent fidgeting and attempts to climb out of bed. When we figured out the reason for the insomnia, there was a relatively simple fix at about 11:00 pm, followed by a restful night. Whew!!

I think we're all maintaining a positive view of her future, even though we each see evidence of new-onset deficits. But none of us know how long or to what extent any of those or new ones will persist. So forward we go with our own medications: tincture of time and essence of patience.